[Author Disclosure: This content reflects the views of the author and is provided for informational purposes only. It does not constitute investment advice and is not a recommendation or endorsement by BioTech Funding Portal. Any investment decision should be based solely on the issuer’s official offering materials.]
Patient registries don't get much attention, but they're doing quiet, essential work.
Organizations like the Fabry International Network and the National Fabry Disease Foundation maintain the patient communities, education, and advocacy infrastructure that make trials like ours possible to design well — and make sure patients hear about opportunities like this one in the first place.
If you're part of one of these organizations, or you lead one we haven't connected with yet: tell us who, so we can make sure they're in the loop.
Follow the whole series: https://bit.ly/Glafabra-TTW
@Brian Christie @Neva West @Chris Hopkins @Tetsu Yung
Testing the Waters disclosure: We are considering a capital raise and are "Testing the Waters" under Regulation Crowdfunding. No money or other consideration is being solicited, and any that is sent in response will not be accepted. We cannot accept any offer to buy securities, and no part of the purchase price can be received until an offering statement is filed and only through the BioTech Funding Portal platform. Any indication of interest is non-binding and involves no obligation or commitment of any kind.
Register for FREE to comment or continue reading this article. Already registered? Login here.
0